My problem began in my early 30s. Just out of the blue, I started having sudden onset, intense nausea and vomiting, the inability to move, speak or read, sensitivity to light and sound, etc. I was, in a sense, "paralyzed" wherever I happened to be when an episode started. The attacks, they didn't just go away...after three or so days, I had to seek medical help! The first year, I went to the ER seven times--just to make it STOP! My primary care provider explained to me, "People just don't get this sick, this fast, for no reason." Thus, my relationship with gastroenterologists began. It was a very long journey.
I was on my third or fourth GI, whom I'd been seeing every six weeks for two years. The physician's assistant came in and said, "I've been on the computer in the next room, and I thought we could try..." I was filled with anger. No improvement for years and we are... guessing?
This, after 20+ years of the same symptoms and signs, and nothing... I weighed 100 lbs., was receiving regular Iron infusions, and was literally near death. I'd been to several doctors, including a neuro-gastroenterologist in another city! If I didn't do something, take control myself, I'd never be well.
My next specialist was a neurologist. She correctly diagnosed me, started medication to prevent attacks, abort episodes, and rescue medicine to help when necessary. At first, I didn't even believe I had Migraine issues. Episodes started with my stomach, not my head. I later learned about "Silent Migraine."
Since my improvement and relief, I feel compelled to help others who are in a similar situation. I understand how you feel, aside from the debilitating attacks.
There is constant fear--fear of losing your job, fear of getting sick while you're out, fear of financial stability, fear of losing relationships because no one understands, fear of being alone, fear of losing everything!